acromelic frontonasal dysostosis

MeSH: C535657ORPHA: 1827

Overview

dysostosis characterized by cranium bifidum, severe hypertelorism, median cleft lip and palate, nasal bifurcation, brachycephaly, large fontanelle, tibial hemimelia, preaxial polydactyly of the feet and brain malformations

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with acromelic frontonasal dysostosis, sourced from HPO and Orphanet clinical annotations.

Large fontanellesBrachycephalyHypertelorismBroad nasal tipBifid nasal tipTelecanthusIntellectual disabilityGlobal developmental delayAgenesis of corpus callosumTalipes equinovarusPreaxial foot polydactylyAbnormality of the glabellaEncephaloceleMeningoceleMidline central nervous system lipomasAbnormal toenail morphologyMedian cleft palateThick nasal alaeBifid noseMedian cleft upper lipVentriculomegalyChoroid plexus cystHypoplasia of the olfactory bulbCryptorchidismWide mouthPtosisMyopiaSeizureLarge sella turcicaUpper airway obstructionPatellar hypoplasiaAplasia/Hypoplasia of the tibiaRetrocerebellar cystAnterior pituitary hypoplasiaHypopituitarismGlaucomaDermoid cyst

Classification & Codes

MeSH Code

C535657

Orphanet Code

ORPHA:1827
acromelic frontonasal dysostosis
MeSHC535657
OrphanetORPHA:1827
Treatments0 drug(s)
Symptoms on record37 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO