centronuclear myopathy X-linked

ORPHA: 596

Overview

centronuclear myopathy that has material basis in X-linked inheritance of mutations in MTM1 on Xq28

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with centronuclear myopathy X-linked, sourced from HPO and Orphanet clinical annotations.

Type 1 fibers relatively smaller than type 2 fibersLow APGAR scoreAbnormality of the eyeNeonatal hypotoniaDecreased fetal movementPolyhydramniosPremature birthPoor suckPneumoniaRespiratory distressRecurrent respiratory infectionsCentrally nucleated skeletal muscle fibersRespiratory failure requiring assisted ventilationSevere muscular hypotoniaFeeding difficulties in infancyFatigable weakness of bulbar musclesFatigable weakness of swallowing musclesWeakness of facial musculatureNecklace skeletal muscle fibersHigh palateDolichocephalyLong faceAbnormal facial shapeInability to walk

Classification & Codes

Orphanet Code

ORPHA:596
centronuclear myopathy X-linked
OrphanetORPHA:596
Treatments0 drug(s)
Symptoms on record24 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO