Diamond-Blackfan anemia

MeSH: D029503ORPHA: 1242 Treatments Available

Overview

rare disease

Available Treatments (2)

DrugFormStatusCountriesLead Time
luspatercept
Orphan Cold Chain
subcutaneous injection, 25 mg/vial, 75 mg/vial powder for solutionFDA Approved, EMA Approved810d
Erythropoietin
Orphan Cold Chain
InjectionFDA Approved414d

Clinical Presentation

Signs and symptoms associated with Diamond-Blackfan anemia, sourced from HPO and Orphanet clinical annotations.

Pure red cell aplasiaElevated red cell adenosine deaminase activityAbnormality of the headPallorLethargyGrowth delaySmall for gestational ageReticulocytopeniaIncreased mean corpuscular volumeMacrocytic dyserythropoietic anemiaPersistence of hemoglobin FErythroid hypoplasiaHypospadiasHorseshoe kidneyRenal agenesisAbnormality of the genitourinary systemCleft soft palateHigh palateWebbed neckShort neckSprengel anomalyTriphalangeal thumbAbnormality of the thenar eminenceAbnormal heart morphologyVentricular septal defectAtrial septal defectDecreased total leukocyte countNormochromic anemiaAbnormality of the upper limbMyelodysplasiaShort statureAbsent thumbShort thumbPartial duplication of thumb phalanxNeurodevelopmental delayRadial artery aplasiaCleft lipMicrocephalyEpicanthusLow anterior hairlineHypertelorismMicrognathiaLow-set earsWide nasal bridgeStrabismusPtosisDevelopmental cataractDevelopmental glaucomaCoarctation of aortaNonimmune hydrops fetalisThrombocytopeniaDecreased total neutrophil countThrombocytosisOsteosarcomaAcute myeloid leukemiaDepressed nasal bridgeMalignant genitourinary tract tumorMicrotiaAdenocarcinoma of the colon

Classification & Codes

MeSH Code

D029503

Orphanet Code

ORPHA:124
Diamond-Blackfan anemia
MeSHD029503
OrphanetORPHA:124
Treatments2 drug(s)
Symptoms on record59 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO