Diencephalic syndrome

ORPHA: 1672

Overview

Diencephalic syndrome (DS) is a rare condition characterized by profound emaciation and failure to thrive (with normal caloric intake and normal linear growth), hyperalertness, hyperkinesias and euphoria, in the presence of hypothalamic tumors

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Diencephalic syndrome, sourced from HPO and Orphanet clinical annotations.

Long penisEverted lower lip vermilionHydrocephalusMacrotiaNystagmusOptic atrophyAtypical behaviorAbnormality of the hypothalamus-pituitary axisHyperhidrosisLarge handsDecreased body weightCachexiaNeoplasm of the nervous systemAbnormality of movement

Classification & Codes

Orphanet Code

ORPHA:1672
Diencephalic syndrome
OrphanetORPHA:1672
Treatments0 drug(s)
Symptoms on record14 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO