epidermolysis bullosa herpetiformis

ORPHA: 79396

Overview

Human disease

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with epidermolysis bullosa herpetiformis, sourced from HPO and Orphanet clinical annotations.

Palmoplantar keratodermaFragile skinAbnormal blistering of the skinNail dystrophyErythemaGeneralized abnormality of skinHyperpigmentation of the skinMiliaAplasia cutis congenitaAtrophic scarsGrowth delayRecurrent skin infectionsAlopeciaAnemiaEnamel hypoplasiaAplasia cutis congenita on trunk or limbsGeneralized reticulate brown pigmentationGastrostomy tube feeding in infancyFeeding difficultiesScarringOral mucosal blistersHypermetropiaPhotophobiaHypopigmentation of the skinGlobal developmental delayCraniosynostosisFailure to thriveAbnormality of the larynxLaryngomalaciaHoarse voiceOnychogryphosisVentriculomegalyRecurrent infectionsBronchomalaciaHypoalbuminemiaDecreased circulating immunoglobulin concentrationAbnormal epiglottis morphologyCongenital nystagmusDepigmentation/hyperpigmentation of skinCorneal opacityDistal lower limb amyotrophySmooth tongueSepsisSquamous cell carcinoma of the skin

Classification & Codes

Orphanet Code

ORPHA:79396
epidermolysis bullosa herpetiformis
OrphanetORPHA:79396
Treatments0 drug(s)
Symptoms on record44 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO