facioscapulohumeral muscular dystrophy

MeSH: D020391ORPHA: 269

Overview

Muscular dystrophy that classically weakens the muscles of the face (facio), shoulder girdle (scapulo) and upper arm (humerus). Weakness usually is asymmetrical and develops in other areas of the body as well, such as the abdomen and shin.

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with facioscapulohumeral muscular dystrophy, sourced from HPO and Orphanet clinical annotations.

Mask-like faciesSkeletal muscle atrophyElevated circulating creatine kinase concentrationHyperlordosisProgressive muscle weaknessScapular wingingSensorineural hearing impairmentKeratitisConjunctivitisPectus excavatumGait disturbanceProtuberant abdomenRestrictive ventilatory defectFrequent fallsScoliosisLimb-girdle muscle weaknessSteppage gaitEMG: myopathic abnormalitiesDecreased facial expressionStraight claviclesAbnormal retinal vascular morphologyDistal upper limb muscle weaknessAbdominal wall muscle weaknessFoot dorsiflexor weaknessComplete right bundle branch blockPectoralis amyotrophyChronic painNocturnal lagophthalmosWeakness of facial musculatureBeevor's signCamptocormiaRetinal detachmentVisual lossSeizureRespiratory insufficiencySupraventricular arrhythmiaSerous retinal detachment

Classification & Codes

MeSH Code

D020391

Orphanet Code

ORPHA:269
facioscapulohumeral muscular dystrophy
MeSHD020391
OrphanetORPHA:269
Treatments0 drug(s)
Symptoms on record37 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO