GM1 gangliosidosis type 1

ORPHA: 79255

Overview

GM1 gangliosidosis type 1 is the severe infantile form of GM1 gangliosidosis (see this term) with variable neurological and systemic manifestations

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with GM1 gangliosidosis type 1, sourced from HPO and Orphanet clinical annotations.

Broad nasal tipPectus carinatumPlatyspondylyHirsutismThickened skinBroad metacarpalsSeizureHydrops fetalisDecreased beta-galactosidase activityHearing impairmentBlindnessAbnormality of the nervous systemAbnormality of the skeletal systemIntellectual disabilityGlobal developmental delayHepatosplenomegalyAbnormal facial shapeDevelopmental regressionUrinary glycosaminoglycan excretionFloppy infantIncreased urinary galactosylated oligosaccharideDysostosis multiplexSpasticityCardiomyopathyExaggerated startle responseDiffuse cerebral atrophySkeletal dysplasiaDiffuse white matter abnormalitiesCherry red spot of the maculaAspiration pneumoniaT2 hypointense basal gangliaMacroglossiaGingival overgrowthLong philtrumLow-set earsMacrotiaFrontal bossingThickened calvariaLarge sella turcicaFlared iliac wingShort long boneBeaking of vertebral bodies T12-L3Depressed nasal bridgeBroad long bone diaphysesHypoplastic vertebral bodiesAcetabular dysplasiaFlattened femoral headFeeding difficultiesSpatulate ribsDecerebrate rigidityAbnormal placenta morphologyAbnormal odontoid tissue morphologyIntrauterine growth retardation

Classification & Codes

Orphanet Code

ORPHA:79255
GM1 gangliosidosis type 1
OrphanetORPHA:79255
Treatments0 drug(s)
Symptoms on record53 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO
GM1 gangliosidosis type 1 | OrphanDrug