Gorham's disease

MeSH: D010015ORPHA: 73

Overview

syndrome that is characterized by bone loss (osteolysis) which is often associated with swelling or abnormal blood vessel growth (angiomatous proliferation). Bone loss can occur in just one bone or spread to soft tissue and adjacent bones

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Gorham's disease, sourced from HPO and Orphanet clinical annotations.

OsteolysisElevated alkaline phosphatase of bone originPatchy reduction of bone mineral densityTorticollisOsteopeniaEdemaBone painAbnormal calvaria morphologyAbnormality of the cervical spineFunctional motor deficitImpaired masticationCortical irregularityOsteolysis involving bones of the lower limbsAbnormality of the temporomandibular jointAbnormality of the internal auditory canalAbnormal facial skeleton morphologyAbnormal bone ossificationAbnormal occipital bone morphologyRhinorrheaOsteolysis involving bones of the upper limbsLymphangiomaMandibular painMastoiditisHearing impairmentAbnormal finger morphologyPleural effusionPathologic fractureAbnormal femur morphologyChiari type I malformationHemangiomatosisAbnormality of the thoracic cavityAbnormal ethmoid bone morphologyMeningitisSpinal cord compressionOsteomyelitisAbnormal pelvis bone morphology

Classification & Codes

MeSH Code

D010015

Orphanet Code

ORPHA:73
Gorham's disease
MeSHD010015
OrphanetORPHA:73
Treatments0 drug(s)
Symptoms on record36 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO