hereditary proximal myopathy with early respiratory failure

MeSH: C566343ORPHA: 178464

Overview

human disease

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with hereditary proximal myopathy with early respiratory failure, sourced from HPO and Orphanet clinical annotations.

Gait disturbanceRestrictive ventilatory defectDyspneaRespiratory insufficiency due to muscle weaknessReduced vital capacitySkeletal muscle atrophyElevated circulating creatine kinase concentrationEMG: myopathic abnormalitiesMuscle fiber splittingIncreased variability in muscle fiber diameterNeck flexor weaknessType 1 muscle fiber predominanceRimmed vacuolesLimited hip movementNecrotizing myopathyFoot dorsiflexor weaknessOrthopneaInternally nucleated skeletal muscle fibersDistal muscle weaknessProximal muscle weaknessTibialis muscle weaknessCalf muscle hypertrophyHypertrophied muscle fibersFalls

Classification & Codes

MeSH Code

C566343

Orphanet Code

ORPHA:178464
hereditary proximal myopathy with early respiratory failure
MeSHC566343
OrphanetORPHA:178464
Treatments0 drug(s)
Symptoms on record24 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO
hereditary proximal myopathy with early respiratory failure | OrphanDrug