IVIC Syndrome

MeSH: C535544ORPHA: 2307

Overview

IVIC syndrome is a very rare genetic malformation syndrome characterized by upper limb anomalies (radial ray defects, carpal bone fusion), extraocular motor disturbances, and congenital bilateral non-progressive mixed hearing loss

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with IVIC Syndrome, sourced from HPO and Orphanet clinical annotations.

Hearing impairmentStrabismusJoint stiffnessHypoplasia of the radiusSevere short statureTriphalangeal thumbScoliosisRadioulnar synostosisSynostosis of carpal bonesAbnormal dermatoglyphicsShort thumbRectovaginal fistulaPreaxial hand polydactylyThrombocytopeniaIncreased total leukocyte countAnal atresiaAplastic clavicleArrhythmia

Classification & Codes

MeSH Code

C535544

Orphanet Code

ORPHA:2307
IVIC Syndrome
MeSHC535544
OrphanetORPHA:2307
Treatments0 drug(s)
Symptoms on record18 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO