Jacobsen syndrome

ICD-10: Q93.5MeSH: D054868ORPHA: 2614941 Treatment Available

Overview

multiple congenital anomaly caused by deletion on chromosome 11, often featuring intellectual disabilities, dysmorphic features, delayed development and heart defects.

Available Treatments (1)

DrugFormStatusCountriesLead Time
L-Methylfolate
Oral tabletFDA Approved15d

Clinical Presentation

Signs and symptoms associated with Jacobsen syndrome, sourced from HPO and Orphanet clinical annotations.

Everted lower lip vermilionMalar flatteningCoarse facial featuresHypertelorismAnteverted naresDelayed speech and language developmentHypotoniaGlobal developmental delayExaggerated cupid's bowShort noseTented upper lip vermilionSevere intellectual disabilityMacroglossiaBrachycephalyMicrocephalyMandibular prognathiaBroad foreheadHearing impairmentChronic otitis mediaThickened helicesUpslanted palpebral fissureSynophrysAtypical behaviorAggressive behaviorAutistic behaviorSelf-mutilationObesityVentricular septal defectBicuspid aortic valveCoarctation of aortaConstipationSleep disturbanceHighly arched eyebrowArrhythmiaCryptorchidismHypospadiasMicropenisVesicoureteral refluxRenal insufficiencyRenal cystHydronephrosisFacial asymmetryDelayed eruption of teethMotor stereotypySeizureAgenesis of corpus callosumLimitation of joint mobilityTetralogy of FallotTalipes equinovarusGastroesophageal refluxPyloric stenosisDyspneaVentriculomegalyCerebral cortical atrophyRecurrent respiratory infectionsDevelopmental regressionSupernumerary nippleBowel incontinenceScoliosisDownturned corners of mouthTracheomalaciaShort staturePulmonary artery stenosisAdvanced eruption of teethHypoplasia of penisSelf-injurious behaviorHernia

Classification & Codes

ICD-10 Code

Q93.5

MeSH Code

D054868

Orphanet Code

ORPHA:261494
Jacobsen syndrome
ICD-10Q93.5
MeSHD054868
OrphanetORPHA:261494
Treatments1 drug(s)
Symptoms on record67 signs
Statuspublished

Treatment Summary

Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO