Johnson–McMillin syndrome

MeSH: C535882ORPHA: 2316

Overview

Johnson neuroectodermal syndrome is characterised by alopecia, anosmia or hyposmia, conductive deafness with malformed ears and microtia and/or atresia of the external auditory canal, and hypogonadotropic hypogonadism

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Johnson–McMillin syndrome, sourced from HPO and Orphanet clinical annotations.

HypogonadismConductive hearing impairmentAtresia of the external auditory canalAlopeciaSparse hairFacial asymmetryProtruding earAbsent eyelashesCarious teethIntellectual disabilityAbsent eyebrowSevere short statureMicrotiaFacial palsyCleft palateEverted lower lip vermilionMicrocephalyBulbous noseChoanal atresiaAnosmiaDownslanted palpebral fissuresHypohidrosisHand polydactylyPreaxial hand polydactylyFailure to thriveTetralogy of FallotMultiple cafe-au-lait spots

Classification & Codes

MeSH Code

C535882

Orphanet Code

ORPHA:2316
Johnson–McMillin syndrome
MeSHC535882
OrphanetORPHA:2316
Treatments0 drug(s)
Symptoms on record27 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO
Johnson–McMillin syndrome | OrphanDrug