Joubert syndrome with renal defect

MeSH: C536296ORPHA: 220497

Overview

Joubert syndrome with renal defect is a rare subtype of Joubert syndrome and related disorders (JSRD, see this term) characterized by the neurological features of JS associated with renal disease, in the absence of retinopathy

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Joubert syndrome with renal defect, sourced from HPO and Orphanet clinical annotations.

NephropathyOculomotor apraxiaIntellectual disabilityAtaxiaHypotoniaGlobal developmental delayCerebellar vermis hypoplasiaApneaMolar tooth sign on MRIAbnormal pattern of respirationLong facePosteriorly rotated earsNystagmusGait disturbanceBiparietal narrowingFeeding difficultiesRenal insufficiencyCleft palateOrofacial cleftHydrocephalusProminent nasal bridgeAnteverted naresStrabismusPtosisIris colobomaAbnormality of the hypothalamus-pituitary axisHand polydactylySeizureAgenesis of corpus callosumTremorEncephalocelePolymicrogyriaAganglionic megacolonHighly arched eyebrowScoliosisAbnormal cardiovascular system morphology

Classification & Codes

MeSH Code

C536296

Orphanet Code

ORPHA:220497
Joubert syndrome with renal defect
MeSHC536296
OrphanetORPHA:220497
Treatments0 drug(s)
Symptoms on record36 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO