juvenile polyposis syndrome

ORPHA: 2929

Overview

autosomal dominant disease that is characterized by predisposition to hamartomatous benign polyps in the gastrointestinal tract, specifically in the stomach, small intestine, colon, and rectum

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with juvenile polyposis syndrome, sourced from HPO and Orphanet clinical annotations.

Intestinal polypJuvenile colonic polyposisRectal polyposisJuvenile gastrointestinal polyposisHamartomatous stomach polypsHematocheziaAnemiaAbdominal painIntussusceptionDiarrheaRectoceleGrowth delayEdemaGastrointestinal hemorrhageChronic fatigueProtein-losing enteropathyMacrocephalyMultiple lipomasHemangioblastomaAbnormal facial shapeLarge foreheadHypertelorismDownslanted palpebral fissuresDepressed nasal bridgeLow-set earsNarrow mouthShort chinMild intellectual disabilitySpontaneous, recurrent epistaxisMucosal telangiectasiaeVisceral angiomatosisTransient ischemic attackBrain abscessExtrahepatic portal hypertensionPulmonary arterial hypertensionColon cancerStomach cancerNeoplasm of the pancreasNeoplasm of the small intestineHamartomatous polyposisSmall intestinal polyposisFailure to thriveAnasarcaHypoproteinemiaEpistaxisArteriovenous malformationClubbing of fingersPulmonary arteriovenous malformationHepatic arteriovenous malformationCerebral arteriovenous malformationAbnormal onset of bleedingNeoplasm of the gastrointestinal tract

Classification & Codes

Orphanet Code

ORPHA:2929
juvenile polyposis syndrome
OrphanetORPHA:2929
Treatments0 drug(s)
Symptoms on record52 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO
juvenile polyposis syndrome | OrphanDrug