Keppen–Lubinsky syndrome

ORPHA: 435628

Overview

human disease

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Keppen–Lubinsky syndrome, sourced from HPO and Orphanet clinical annotations.

Progeroid facial appearanceCongenital generalized lipodystrophyOpen mouthMicrocephalyShort philtrumMicrognathiaIntellectual disabilityHyperreflexiaPremature skin wrinklingGingival overgrowthHigh palateAbnormal forehead morphologyLoss of facial adipose tissueMask-like faciesUnderdeveloped nasal alaeNarrow nasal bridgeAbnormality of eye movementProptosisShallow orbitsAbnormally large globeHypertoniaSpastic tetraparesisFlexion contractureFailure to thrivePolyhydramniosRespiratory insufficiencyDyspneaOpisthotonusProfound intellectual disabilityScoliosisUpper airway obstructionProminent nasal tipRecurrent pneumoniaDecreased testicular sizePostnatal growth retardationLipodystrophyNarrow narisDimple chinTented upper lip vermilionSevere global developmental delaySeizureIncreased susceptibility to fractures

Classification & Codes

Orphanet Code

ORPHA:435628
Keppen–Lubinsky syndrome
OrphanetORPHA:435628
Treatments0 drug(s)
Symptoms on record42 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO