Legius syndrome

ICD-10: Q85MeSH: C548032ORPHA: 137605

Overview

rare genetic skin pigmentation disorder characterized by multiple cafe-au-lait macules

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Legius syndrome, sourced from HPO and Orphanet clinical annotations.

Multiple cafe-au-lait spotsAtypical behaviorAxillary frecklingSpecific learning disabilityInguinal frecklingMacrocephalyShort attention spanHyperactivityAbnormal sternum morphologyMultiple lipomasShort statureHearing impairmentCataractDelayed speech and language developmentNephrolithiasisXanthelasmaSeizureHypotoniaMotor delayDystoniaMitral valve prolapsePulmonic stenosisScoliosisNephroblastomaClinodactyly of the 5th fingerAcute monocytic leukemiaParoxysmal atrial tachycardiaAttention deficit hyperactivity disorderChiari type I malformationVestibular schwannomaPolydactylyNon-small cell lung carcinomaMale urethral meatus stenosisGastrointestinal desmoid tumorCognitive impairmentOvarian neoplasmBrain imaging abnormality

Classification & Codes

ICD-10 Code

Q85

MeSH Code

C548032

Orphanet Code

ORPHA:137605
Legius syndrome
ICD-10Q85
MeSHC548032
OrphanetORPHA:137605
Treatments0 drug(s)
Symptoms on record37 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO
Legius syndrome | OrphanDrug