Meckel syndrome

ORPHA: 564

Overview

a rare, lethal, ciliopathic, genetic disorder with malformations of the urinary system, of central nervous system, hepatic developmental defects, and pulmonary hypoplasia.

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Meckel syndrome, sourced from HPO and Orphanet clinical annotations.

Posteriorly rotated earsMulticystic kidney dysplasiaMicrocephalyPostaxial hand polydactylyPostaxial foot polydactylyEncephaloceleCongenital hepatic fibrosisCryptorchidismAmbiguous genitaliaCleft palateFull cheeksHypertelorismSloping foreheadMicrognathiaDepressed nasal ridgeMicrocorneaCataractAbnormal chorioretinal morphologyMicrophthalmiaSclerocorneaOptic atrophyOligohydramniosTalipesLobar holoprosencephalyAplasia/Hypoplasia of the irisMale pseudohermaphroditismUrethral atresiaUreteral duplicationFurrowed tongueHydrocephalusAnophthalmiaPreaxial hand polydactylyDandy-Walker malformationSitus inversus totalisPancreatic cystsAspleniaAccessory spleenAnencephalyBowing of the long bonesCystic liver diseaseAplasia/Hypoplasia of the corpus callosumAplasia/Hypoplasia of the tongueTrue hermaphroditismAbnormal cardiovascular system morphologyPancreatic fibrosis

Classification & Codes

Orphanet Code

ORPHA:564
Meckel syndrome
OrphanetORPHA:564
Treatments0 drug(s)
Symptoms on record45 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO