neurofibromatosis type 1 due to NF1 mutation or intragenic deletion

ORPHA: 363700

Overview

human disease

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with neurofibromatosis type 1 due to NF1 mutation or intragenic deletion, sourced from HPO and Orphanet clinical annotations.

HypertelorismCafe-au-lait spotMacrocephalyCoarse facial featuresBroad neckAbnormality of the skeletal systemAxillary frecklingLarge handsHypotoniaSpecific learning disabilityJoint hypermobilityAbnormal heart morphologyLong footAbnormal facial shapeScoliosisAttention deficit hyperactivity disorderSpeech articulation difficultiesLisch nodulesProportionate tall statureBone cystNeurodevelopmental delayInguinal frecklingSubcutaneous neurofibromaBrain imaging abnormalityHigh palateLong faceEpicanthusFacial asymmetryNarrow foreheadLong philtrumMicrognathiaProtruding earHypotelorismPectus excavatumIntellectual disabilitySeizureGlobal developmental delayPes cavusProminent glabellaHypoplasia of the corpus callosumGenu valgumShort statureAbnormal dental pulp morphologyOptic nerve gliomaSpinal neurofibromaImpaired visuospatial constructive cognitionAbnormal renal morphologyThick vermilion borderNeurofibrosarcomaAbnormality of the sphenoid sinusHydronephrosisHydrocephalusSinusitisHemangiomaVentricular septal defectAtrial septal defectMitral valve prolapseHypertrophic cardiomyopathyPulmonic stenosisMitral regurgitationPatent foramen ovaleHeadacheKyphoscoliosisAbnormal tibia morphologyHyperlordosisRenal hypoplasia/aplasiaMaculeLower limb dysmetriaOssifying fibromaGranulomaSchwannoma

Classification & Codes

Orphanet Code

ORPHA:363700
neurofibromatosis type 1 due to NF1 mutation or intragenic deletion
OrphanetORPHA:363700
Treatments0 drug(s)
Symptoms on record71 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO
neurofibromatosis type 1 due to NF1 mutation or intragenic deletion | OrphanDrug