Proteus-like syndrome

ORPHA: 2969

Overview

Proteus-like syndrome describes patients who do not meet the diagnostic criteria for Proteus syndrome (see this term) but who share a multitude of characteristic clinical features of the disease

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Proteus-like syndrome, sourced from HPO and Orphanet clinical annotations.

Polycystic ovariesHydrocephalusMacrocephalyDolichocephalyMandibular prognathiaAnteverted naresDownslanted palpebral fissuresCataractRetinal detachmentMyopiaAbnormal pupil morphologyAbnormality of the parathyroid glandHemangiomaSubcutaneous lipomaHeterochromia iridisLimbal dermoidIntellectual disabilityCommunicating hydrocephalusSplenomegalySkeletal dysplasiaGenu recurvatumVenous insufficiencyIrregular hyperpigmentationShagreen patchThymus hyperplasiaOpen biteEpidermal nevusLower limb asymmetryBronchogenic cystHyperostosisExostoses

Classification & Codes

Orphanet Code

ORPHA:2969
Proteus-like syndrome
OrphanetORPHA:2969
Treatments0 drug(s)
Symptoms on record31 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO