PURA-related severe neonatal hypotonia-seizures-encephalopathy syndrome

ORPHA: 438213

Overview

human disease

Available Treatments (0)

No treatments linked yet

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Clinical Presentation

Signs and symptoms associated with PURA-related severe neonatal hypotonia-seizures-encephalopathy syndrome, sourced from HPO and Orphanet clinical annotations.

Intellectual disabilityAbsent speechBroad-based gaitFloppy infantDelayed fine motor developmentNeurodevelopmental delayAbnormality of the eyeAbnormality of visionAbnormal conjugate eye movementSoft skinSeizureExcessive daytime somnolenceMotor delayDystoniaConstipationHypothermiaApneaExaggerated startle responseDroolingInability to walkHypoventilationObstructive sleep apneaBreathing dysregulationCentral sleep apneaReceptive language delayFeeding difficultiesStereotypical hand wringingRecurrent singultusDecreased circulating vitamin D concentrationDyskinesiaAbnormality of the genitourinary systemRetrognathiaFull cheeksStrabismusHypermetropiaEsotropiaNystagmusAbnormality of the endocrine systemAbnormality of the skeletal systemOsteoporosisMyoclonusJoint hypermobilityHip dysplasiaAbnormal heart morphologyDeep philtrumDysphagiaGastroesophageal refluxMyopathic faciesHypoplasia of the corpus callosumScoliosisInvoluntary movementsShort statureBilateral tonic-clonic seizure on awakeningEversion of lateral third of lower eyelidsAlmond-shaped palpebral fissureHigh anterior hairlineGeneralized tonic seizureEpileptic spasmAspiration pneumoniaDelayed myelinationWidened subarachnoid spaceExophoriaHyperintensity of cerebral white matter on MRIBrown anomalyCerebral visual impairmentCryptorchidismVesicoureteral refluxHydronephrosisUterine prolapseOptic disc pallorNephrolithiasisHypothyroidismPrecocious pubertyIncreased circulating prolactin concentrationOsteopeniaAbsent septum pellucidumVentricular septal defectAtrial septal defectPulmonic stenosisPatent ductus arteriosusBicuspid aortic valvePatent foramen ovaleAnemiaAbnormality of the anterior pituitaryAnomalous origin of left subclavian arteryDecreased circulating iron concentration

Classification & Codes

Orphanet Code

ORPHA:438213
PURA-related severe neonatal hypotonia-seizures-encephalopathy syndrome
OrphanetORPHA:438213
Treatments0 drug(s)
Symptoms on record86 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO