SADDAN

ORPHA: 851651 Treatment Available

Overview

autosomal dominant disease characterized by severe achondroplasia, developmental delay and acanthosis nigricans that has material basis in heterozygous mutation in the FGFR3 gene on chromosome 4p16

Available Treatments (1)

DrugFormStatusCountriesLead Time
vosoritide
Orphan Cold Chain
subcutaneous injection, 0.4mg, 0.56mg, 1.2mg vialsFDA Approved821d

Clinical Presentation

Signs and symptoms associated with SADDAN, sourced from HPO and Orphanet clinical annotations.

MicrocephalyAbnormal clavicle morphologyAcanthosis nigricansHypoplasia of the corpus callosumGeneralized-onset seizureFemoral bowingTibial bowingMetaphyseal chondrodysplasiaAplasia/Hypoplasia of the mandibleFibular bowingSevere intellectual disabilitySevere global developmental delayEnlarged cerebellumBrain atrophy

Classification & Codes

Orphanet Code

ORPHA:85165
SADDAN
OrphanetORPHA:85165
Treatments1 drug(s)
Symptoms on record14 signs
Statuspublished

Treatment Summary

Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO