segmental outgrowth-lipomatosis-arteriovenous malformation-epidermal nevus syndrome

ORPHA: 137608

Overview

human disease

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with segmental outgrowth-lipomatosis-arteriovenous malformation-epidermal nevus syndrome, sourced from HPO and Orphanet clinical annotations.

MacrocephalySubcutaneous noduleCongestive heart failureTalipesRecurrent fracturesReduced bone mineral densityHemiplegia/hemiparesisVenous insufficiencyExcessive wrinkled skinHamartomaNeoplasm of the breastArteriovenous malformationNeoplasm of the thyroid glandLower limb asymmetryUpper limb asymmetryOvarian neoplasmVisceral angiomatosisLymphangiomaPapule

Classification & Codes

Orphanet Code

ORPHA:137608
segmental outgrowth-lipomatosis-arteriovenous malformation-epidermal nevus syndrome
OrphanetORPHA:137608
Treatments0 drug(s)
Symptoms on record19 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO