Septopreoptic holoprosencephaly

ORPHA: 280195

Overview

Septopreoptic holoprosencephaly (HPE) is a very rare subtype of lobar HPE (see this term) characterized by midline fusion limited to the septal and/or preoptic regions of the telencephalon without a significant frontal neocortical fusion

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Septopreoptic holoprosencephaly, sourced from HPO and Orphanet clinical annotations.

Precocious pubertyAnterior hypopituitarismCentral diabetes insipidusIntellectual disabilityAbnormal corpus callosum morphologyGeneralized hypotoniaSpecific learning disabilityAbnormal midbrain morphologyExpressive language delayAbnormal vertebral morphologyImpulsivityMicrocephalyMegalencephalyAnteriorly placed anusCoarctation of aortaDysphagiaFrontoethmoidal encephaloceleAbnormal septum pellucidum morphologyGastrostomy tube feeding in infancyHypoplasia of the ponsPerisylvian polymicrogyriaRhombencephalosynapsisShort attention spanAbnormal rib morphology

Classification & Codes

Orphanet Code

ORPHA:280195
Septopreoptic holoprosencephaly
OrphanetORPHA:280195
Treatments0 drug(s)
Symptoms on record24 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO