Sporadic late onset nemaline myopathy

ORPHA: 171442

Overview

Adult-onset nemaline myopathy is a rapidly progressive type of nemaline myopathy (NM; see this term) characterized by a very late onset

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with Sporadic late onset nemaline myopathy, sourced from HPO and Orphanet clinical annotations.

MyopathyEMG: myopathic abnormalitiesNemaline bodiesBradykinesiaMyalgiaUpper limb muscle weaknessIncreased variability in muscle fiber diameterNeck flexor weaknessType 1 muscle fiber predominanceIncreased muscle lipid contentParaproteinemiaHigh palateNarrow faceLong faceMicrognathiaHyporeflexiaGait disturbanceFlexion contractureDilated cardiomyopathyNeuromuscular dysphagiaBulbar signsRespiratory insufficiency due to muscle weaknessReduced vital capacityMuscle stiffnessLower limb muscle weaknessMuscle fibrillationFeeding difficultiesMildly elevated creatine kinase

Classification & Codes

Orphanet Code

ORPHA:171442
Sporadic late onset nemaline myopathy
OrphanetORPHA:171442
Treatments0 drug(s)
Symptoms on record28 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO