X-linked intellectual disability-limb spasticity-retinal dystrophy-diabetes insipidus syndrome

ORPHA: 423479

Overview

#945;-fetoprotein and intrauterine growth restriction is observed in routine pregnancy examination

Available Treatments (0)

No treatments linked yet

Clinical trials or compassionate use may be available — consult a specialist.

Clinical Presentation

Signs and symptoms associated with X-linked intellectual disability-limb spasticity-retinal dystrophy-diabetes insipidus syndrome, sourced from HPO and Orphanet clinical annotations.

Aplasia/Hypoplasia of the optic nerveAxial hypotoniaGastrostomy tube feeding in infancyDelayed myelinationProfound global developmental delaySlow pupillary light responseClonusBabinski signProlonged neonatal jaundiceCentral sleep apnea5-minute APGAR score of 11-minute APGAR score of 0Profound intellectual disabilityDolichocephalyHypertelorismLow-set earsSensorineural hearing impairmentUnderdeveloped nasal alaeDeeply set eyeOptic disc pallorRetinal dystrophyExotropiaDiabetes insipidusMacular pseudocolobomaSpastic tetraparesisIntrauterine growth retardationSevere failure to thriveBilateral tonic-clonic seizureHypoplasia of the corpus callosumLimb hypertoniaShort statureElevated amniotic fluid alpha-fetoproteinHyperactive deep tendon reflexesUndetectable visual evoked potentials

Classification & Codes

Orphanet Code

ORPHA:423479
X-linked intellectual disability-limb spasticity-retinal dystrophy-diabetes insipidus syndrome
OrphanetORPHA:423479
Treatments0 drug(s)
Symptoms on record34 signs
Statuspublished
Factual Authority
Last Updated3/20/2026
Clinical DataHPO · Orphanet
Drug DataFDA · EMA · CDSCO